My Lyme literate medical doctor (LLMD) thinks this will all be explained when I get a positive Babesia diagnosis--something she seems certain is inevitable. I gave a blood sample yesterday, which is being sent to the IGenix lab (supposedly the gold standard in Lyme and Babesia testing). Frankly, I don't think I'm dealing with a Lyme or Babesia. It would be difficult to explain all of the reasons why I feel this way, so I'll save it for another post. Nonetheless, I want to fully explore those possibilities and hopefully rule them out once and for all. I receive the results of the IGenix tests in early December.
In the meantime, I visited my primary care physician (Dr. L). and told her about the shortness of breath and related problems. She first tried a nebulizer containing essentially the same medicine as an asthma rescue inhaler. No improvement. Next, she sent me for an X-ray. I knew this would be pointless, but sometimes you have to let your doctor work through their mental "flow chart" until you can get to more fruitful diagnostic testing.
Next, Dr. L is sending me to a pulmonologist. I think this will again be pointless. I saw a pulmonologist during my acute phase about 4 years ago. I was having shortness of breath at that time too, although not as bad as now. He gave me a spirograph test and a treadmill exercise test. I passed both tests just fine. If I pass again this time, I'd really like to see an allergist as my next appointment. Given that the shortness of breath always comes with post-nasal drip, it doesn't seem likely that I have a lung problem alone. It seems more likely that something is causing inflammation throughout my entire respiratory system, from the nasal passages to the lungs. This would be more in an allergist's wheelhouse--or so I figure.
Not content to leave everything up to my doctors alone, I tried a few experiments to see if I could treat the problem on my own. I have a few prescription steroids and oral anti-inflammatories in my medicine cabinet. So here's a list of things that had absolutely NO noticeable affect:
1. Oral Prednisone, 5 mg
2. Vicodin 5mg/300mg
3. Azelastine Rx nasal spray
4. Flonase OTC nasal spray
5. Breathe Easy Herbal Tea (yes, I tried this. I was desperate!)
6. Fresh air (possibly more experimentation is needed here - can't completely rule this out.)
At this point, I'm starting to get worried that I'm running out of possibilities. Shortness of breath is one symptom I really don't want to "just live with." This is crazy! With all of the diagnostic technology available to doctors today, how can they not figure this out?